Tuesday, March 6, 2012

Pins for SALE!!!!


These pins are for sale for $3.00. All proceeds will be going to our MDA Walk that we are doing on March 24,2012. If you would like to buy one or just like to donate to TEAM AIDAN just let me know. I know times are hard but any amount is appreciated. EVERY PENNY COUNTS TO FIND A CURE FOR DMD.


Thursday, March 1, 2012

Getting Ready for our first MDA Muscle Walk




We are doing our first MDA Muscle Walk on March 24,2012. We have so many on our team which is fantastic. Upcoming this weekend I will be posting some things we are selling. I have some pins that were made saying Team Aidan and they will be for $3.00. Also I have bought bracelets that say HOPE FOR AIDAN- END DMD their $3.00. In all kinds of colors. I will have more information and photos this weekend. If you would like to my a donation to our team, TEAM AIDAN please go to
http://www2.mda.org/site/TR/Walk/44-D1-455-AtlantaEastDistrict?px=1042845&pg=personal&fr_id=1421
Also Shamrocks are out and around businesses please don't forget to buy a Shamrock for the MDA. I am looking forward to this summer. We are all wanting to go back to the R-Ranch!!! We love camping. Aidan is doing so well right now and we are enjoying our little man. His brother and sister are in t-ball this season and its funny to watch him do things they do. His speech is improving everyday. Want to express my gratitude to Honda Parts Connection. They have donated 48.23 to Aidan from his change jar. We are blessed to have family and friends that care about our little Aidan. Hope everyone has a great Thursday!!!

Tuesday, February 28, 2012

Sickness



Last week Aidan and me had the sickness. Not sure if it was the flu or not but it sure wasn't fun. We stayed home all last week and tried to feel better. I did take Aidan to the hospital on Thursday as a precaution because just never know anymore what will go on. Each time he gets sick I worry constantly about him. Its hard to always make sure his fever stays down. But now we are doing great again. We both went back to daycare and work yesterday and been feeling better. Aidan is doing good at talking. He is saying more words each day. He does say mommy now and he says it all the time. He is in this little stage of yelling which I hope its a short stage because it's not going well with mommy.

Wednesday, February 15, 2012

6 Months Today

Looking back the past year. Next month will be a year when everything started to happen!









Today marks six months since Aidan's diagnosis. Has it changed anything? Of course. It changed the path that we were taking and also somethings we viewed we now view them differently. It didn't change the way we love our children and it made us stronger. Aidan is a wonderful little boy that has some much joy that you wish you could have everyday. When I use to hear that things happen for a reason I always thought who came up with that was cracked. LOL. Now I honestly do believe that things do happen for reason. Of course some days I don't understand they why or how part but Aidan is in our family for a reason he was brought to us for a reason. I am enjoying being his mother and each day as we go on I am learning how to live with Duchenne. I probably not gonna like it some days but I know thats okay. I don't have to be okay with it but I will be strong for Aidan and We as a family will fight for our little boy. At first many people came together and talked about Aidan and prayed for Aidan. As the months go on I think the sting has gone but the disease hasn't left. So anyone who is reading this blog please keep praying for Aidan. He still has this disease and we still need a cure. Pray for the many boys that fighting each day.

Friday, February 10, 2012

The New Year




Well my goal to blog more has not came true yet. After the holidays we tried to get back to the swing of things but that didn't happen. Last week I had to take a unexpected trip to Ohio with my mom. My grandfather went to heaven on January 31st. Which also was my birthday. As I was sad that day I knew my birthday is a celebration of my life but also a celebration of his legacy. He was a wonderful man and fought so hard. I also know that he is heaven looking over my children and they now have another guardian angel. Enough of the sad things I would like to say Aidan is now talking more and more each day. He is just the light of our family. Stephen and me are happy he is talking but maybe missing him being our baby. Terrible two's have kicked in full force and we are running away! LOL. He is not having many issues at the moment. He still gets speech and physical therapy. We are just trying to go on with our everyday life. Someone said last week to me, I don't know how you do it? How do you go on knowing your child has that disease? I told them we don't live in the future we live for each day that is given to us. We try to think about the now. I am not saying Stephen and me don't have conversations about the future because we do but we do not dwell on what might happen. He isn't going ot the doctor much anymore. Which is a good thing for him but also bad in way because There isn't much to do for him at the moment. I am trying to get over that because I am the type I want to change it and what can I do to make it better but with Duchenne it doesn't work that way.

Wednesday, December 21, 2011

Getting ready for the Season of Giving

We have been so busy getting ready for Christmas. I will start updating better beginning of the year. Just so busy as a family right now to be posting but wanted to put some photos up as a family.





Tuesday, November 29, 2011

Give Thanks!

We had a fantastic Thanksgiving. Couldn't ask for a better one. Aidan went to the MD Clinic last Monday to see the rehab specialists. My mom and me got some clarification on Aidan. He is a thriving two year old. Right at this moment there isn't much more we could do for him. Keep doing what we are doing. He has speech and some physical therapy. They said usually parents don't find out their child has this disease until their 5 or 6 so its a blessing we found out early. Of course I have this urge I want to do more. I want to do something but you really cannot. I figure we can show awareness, try to raise money for a cure, that is our best options right now. We cannot do anything to his body but we can spread the word around the world. So we have a few things in the works. The MD is having the walk-a-thon this March and we made a team called TEAM AIDAN. If anyone is interested joining our team let me know. Email is the best way to reach me: elainecabe@gmail.com. I want to still ask everyone to please pray for Aidan, our family, pray for all the children with DMD, and pray for the families of the lost.

On a good note, we are getting ready for Christmas

Thanks to my hubby for doing a terrific job decorating!