JOURNEY

I started this blog little over a year ago. It was therapy for me I guess and now people ask have you put new posts up yet. When I came up with the name The Cabe Journey I really didn't know what I was committing to or what I really was gonna write about. I actually hate writing. I knew when Aidan's diagnosis came it changed our life completely but I didn't know how or how much it would. It has became a journey in its self. DMD doesn't define us and it effects our journey in life but we make our own journey. I am glad I named it the Cabe Journey because this isn't the DMD journey its about the Cabe Family's journey in life. We still have our bad and good days. We still have some moments we do not even want to say the words DMD. Sometimes we enjoy just to be in denial with the whole thing. Then there are times when we are proud to say our son has DMD and we will FIGHT!!! We are happy that our son is smiling and saying words now. I have learned through all of this is its okay to sit back and just watch life. I cannot fix everything and do every little thing anymore. Its time to just go with the journey! This song sums it up!



                                                               "I Choose To Believe"

[Verse 1]
It didn't take long for my whole world to change
One phone call now life will never be the same
It's like I'm watching my whole world go dark
Nothing makes much sense 
But still with all my heart

[Chorus]
I Choose to believe
And never give up hope
God is good
He's in control
I'll keep the faith
I trust in His way
Even when His face is hard to see
I choose to believe 

[Verse 2]
It's easy to believe when everything goes our way
But we are all gonna go threw fire to test our faith
Life hurts so much that we can hardly breathe
We're begging to know why
But it's such a mystery 

[Chorus]
I Choose to believe
And never give up hope
God is good
He's in control
I'll keep the faith
I trust in His way
Even when His face is hard to see
I choose to believe 
Yea
Yea

[Bridge]
Even when my world is shaken
Even when my heart is breaking
Even when it seems He's taken so long

[Chorus]
I Choose to believe
And never give up hope
God is good
He's in control
I'll keep the faith
I trust in His way
Even when His face is hard to see

[Chorus]
I Choose to believe
And never give up hope
God is good
He's in control
I'll keep the faith
I trust in His way
Even when His face is hard to see
I choose to believe 
I choose to believe

Jesus, Jesus how I trust Him
How I prove Him over and over
Jesus, Jesus precious Jesus
Over grace to trust Him more

Talking!

Aidan is enjoying school and learning a lot. He is becoming a little toddler but horrible threes have came in full force. We are still working with the leg splints. First week of November we go to Ohio for Aidan's 6 month check up. I am scared, worried, but excited and trying to do what is best for him. We still have a few hard decisions to make but we will do it together.

Sleep at Night?

Last week at work a young guy came in to my office and saw the change jar I had at my desk for Aidan. He said I know what Muscular Dystrophy is but what is Duchenne? I began to explain my son's disease to him. He looked at me and said that is awful. How do you sleep at night knowing your son has this disease. I was stunned at someone saying that to me. I told him I go to sleep knowing my son had a smile on his face when he went to bed. Knowing everyday we give him our love and take in every moment we can. At first I was a little offended by his statement but I realized probably many people think that when I explain to them about Aidan's disease. We go on everyday thinking about all kinds of stuff. One good thing from the DMD diagnose it made our family realize the importance of moments, enjoyments, and take one smile at a time.

Next on order of the past week is the leg splints. It's been a trying week! Aidan knows how to take them off. He doesn't keep them on long. We are trying our best to make him keep them on. We don't blame him, what three year old would want to wear these at night. What adult would wear these at night? We are just gonna try our best and hope for the best. One night at a time here we come!!!!

3RD BIRTHDAY!

 FIRST DAY OF SCHOOL!

 MAKING FUNNY FACES AT MOMMY!

 FIRST DAY OF SCHOOL!

 

 

Aidan is 3 today! I cannot believe my baby is three. He is my last baby! No more for me. Its bittersweet. I thought about how we got here and how we are going in the future. When Aidan was born I didn't know I would become his mother. I was there when he was born. Some might have thought I was crazy to take on another child but Aidan just had this thing about him you could never ignore. He smiles all the time and he gives the biggest hugs. Oh don't worry terrible three's have hit and there will be some trying days but I am glad that I got to be the one who puts him in time out and who kisses him when he gets hurt. Aidan has turned into a character. He laughs, plays, and loves to get into everything. He has grown so quickly since last year especially at the R-Ranch. Use to be a chore to go to the R-Ranch when he was a baby. Now he just wants to do whatever the older kids are doing and some things I wish he did not see them doing. lol. Next month I am proud to announce that our adoption will be going through! On November 5,2012 Aidan will be ours. He has always been ours in our hearts but now he can take on my husband's name. This experience has been trying, emotional, but exhilariting and happiness rolled into one. Aidan's name will be changed. He is keeping the name Aidan but we will announce his full name next month! :-)

August 2012

August was a hard month for us. It was a year from Aidan's diagnosis. End of July we lost a great man, Uncle Mike. It's a wave of emotions. Through all this I lay my head down to sleep and realize that tomorrow will bring new emotions and the ones that were there yesterday are gonna start healing. This is the face I get in the morning before we start our day. He doesn't know it's been a year or that mommy had a bad night sleeping. All he wants is to read his book.

A Year it has been......

It has been a year since Aidan's diagnosis. WOW really? I still can feel the pain and the sorrow. Feels like yesterday sometimes. First week of the diagnosis I cried every single day. I didn't think I would come out of this roller coaster of emotions. Then the next week I cried every other day. Now I cry once in awhile when I just need to let it out. Aidan has changed so much since last year. He is still doing speech and physical therapy. He does say words and sometimes puts two words together. Each day I remember that we were choosen as his parents for a reason. Sometimes I wonder why my little boy? why him? but then I remember what my friend told me when I was having a bad day a year ago. She said why not us? We were choosen for this for a reason, So why not pick us. We are strong, encouraging, and we will stand up and fight. Every day I try and remember that. We still have our struggles and we still have to make some hard decisions but we will do it to the best of our ability and do whats right for Aidan. This year has made me stronger and has made me realize things that I took for granted. I adore being Aidan, Jacob, and Abagail's mommy.

Guardian Angel

Sorry blogging has became the back burner for me. I know sounds horrible but life gets busy sometimes. I wanted to let everyone know on July 27th 2012 a special man went to heaven. My uncle, Mike, fought a long battle and never gave up! He is an encouragement to everyone that the little things don't matter anymore. We all have problems, We all have issues, but there is someone out there losing a loved one or battling something severe. Everyone asks me How do you go on? How do you live knowing your son's diagnosis? Well its called living for a reason. We live for the time we have, we live for that laugh from our kids, We live to give our kids a life. Everyday is a struggle I dont want to sugar coat it but everyday is also a gift. Each day I know that Mike was around me for a reason and we endured a lesson in life by his death. Going to bed at night it helps me to know Uncle Mike is watching over my kids and they have another guardian angel. Each day I wonder if I am making the best decisions for Aidan's care or if I am taking the wrong steps but there is no handbook for a child with Duchenne. There isn't a book you can pick up at the library and tell me how to deal with everything. We deal with it the best we can and we work through it.