Old out in with the New!

I am in the process of making a new video. It is actually harder now for me. When I first did one it was like therapy. I might have been numb but now seeing him and seeing him grown into this magical little boy shows how much we need a cure! Aidan,   Mommy, Daddy, Jacob and Minnie love you and so glad you came into our family. Please watch our video I made a little over a year ago!


Aidan's Journey

Busy, Busy, Busy

                   Ever since the adoption we have been really busy doing so many things. We have been over joyed because of the adoption. Now when we say Aidan Lee its really Aidan Lee! That feeling is the best feeling ever oh and also knowing that no one can ever take my son away. Now I have a few problems with his medicaid and certain things but hopefully everything will be okay. We are taking the kiddos to Disney for Christmas. They are really excited! We are fortunate that we can afford to go this year. We have been trying to save and cut some things like i.e. mommy wants new flooring. One thing at a time. I got some sweet messages from some fellow DMD parents and some family that gave me encouraging words about what I did for Aidan. Stephen and me are very blessed to be able to adopt Aidan. He is an added pride and joy for our family. We weren't saying no to a third child but we didn't really make a decision about it but God had other plans for us. The reason I am a strong willed woman is because of one woman and I want you to know about her. Her name is Michelle but to me her name is MOM. My Step Dad and my mom started their lives without kids. We all moved out and they were traveling and enjoy life without responsibilities. That all changed. There were some circumstances that I will not go into but they were faced with three children that needed them. It was their grandchildren. My mom and step dad decided to take in these children and raise them. They didn't do it out of duty. They did it out of love. At first I think they had a period of adjusting with no children from not having young kids. (I'm the youngest and I was 20 at the time). They have raised these three kids for the past five years now but that's all the kids know is this life. Its not poor kids It's what great kids they are. I am strong because my parents show me that anything is possible and you put others before you. We didn't have to raise Aidan. We choose to do what we needed to do and what we wanted to do. We are faced with decisions every day and some times we take the wrong ones but the good ones are that much sweeter.



This is the sweet part

ADOPTION

We are finally here. I am not sure how to describe how happy and feel accomplished on Aidan's adoption. It was a long wrong but a great ending. Aidan's name was changed and he is now
Aidan Lee Cabe. He took my husband's middle name. Here is some highlight pictures on that so special day!

Aidan looking at mommy!

This is my sweet baby boy

For Christmas I got to be a CABE

Adoption Certificate 

Aidan's trip to Ohio

We got no news but hey thats good news to us right? He had several tests done. He had a ekg, echo, and ability test. He did pretty well. He only cried a little. They did recommend steriods on the weekends for Aidan. Stephen and me discussed it over and over and right now we have decided no. We might change our minds later but right now we are not okay with it. He is still our baby. We have a new date for the adoption but I am not posting until it absoutely goes through. I do not want another upset because court cannot get it together! We will be going back to Ohio in November 2013 and they will start some more extensive testing. Right now Aidan is doing well. A few bumps some days but we get through them. He is enjoying school and of course still wrestling with his brother. We are very hopeful for the upcoming year and before you know it we will be having another MDA walk a thon. So get ready everyone!!!!

  Aidan's Echo(he was watching the Cars Movie)

  Aidan's EKG my poor baby crying :-(

The Next Day

Everyday through the week I do something that is productive with DMD. I do not try to research on the weekends because I have noticed it will change my mood if I do. I try to make the weekends about family! Every time I have an appointment or something to do with DMD I am okay when I do it. I feel like its a mission and need to get these things accomplished but the NEXT day I feel like I got hit by a truck. It's a wave of emotions. It is getting easier as the months go on since Aidan's diagnosis but the hurt never goes away. I know I am stronger than I was a year ago. I know I am better person than a year ago but I still feel the aftermath of doing things. I know I am doing what I can at this moment for Aidan but I have to realize I need to take things slow sometimes and not rush or stress about things so much! Aidan is doing well. He still hates his leg splints and we are going back to the doctor to get them fixed. In a week we are going back to Ohio to Nationwide's Hospital and see his doctor. I am excited, stress, and have anxiety all in one. This time my husband, Stephen, is going so it will be good for him to hear what the doctors have to say. I know part of him feels that I am a crazy over protective mom sometimes. lol.

Mommy needs to stop with the videos! lol

This video was to his nanny!

JOURNEY

I started this blog little over a year ago. It was therapy for me I guess and now people ask have you put new posts up yet. When I came up with the name The Cabe Journey I really didn't know what I was committing to or what I really was gonna write about. I actually hate writing. I knew when Aidan's diagnosis came it changed our life completely but I didn't know how or how much it would. It has became a journey in its self. DMD doesn't define us and it effects our journey in life but we make our own journey. I am glad I named it the Cabe Journey because this isn't the DMD journey its about the Cabe Family's journey in life. We still have our bad and good days. We still have some moments we do not even want to say the words DMD. Sometimes we enjoy just to be in denial with the whole thing. Then there are times when we are proud to say our son has DMD and we will FIGHT!!! We are happy that our son is smiling and saying words now. I have learned through all of this is its okay to sit back and just watch life. I cannot fix everything and do every little thing anymore. Its time to just go with the journey! This song sums it up!



                                                               "I Choose To Believe"

[Verse 1]
It didn't take long for my whole world to change
One phone call now life will never be the same
It's like I'm watching my whole world go dark
Nothing makes much sense 
But still with all my heart

[Chorus]
I Choose to believe
And never give up hope
God is good
He's in control
I'll keep the faith
I trust in His way
Even when His face is hard to see
I choose to believe 

[Verse 2]
It's easy to believe when everything goes our way
But we are all gonna go threw fire to test our faith
Life hurts so much that we can hardly breathe
We're begging to know why
But it's such a mystery 

[Chorus]
I Choose to believe
And never give up hope
God is good
He's in control
I'll keep the faith
I trust in His way
Even when His face is hard to see
I choose to believe 
Yea
Yea

[Bridge]
Even when my world is shaken
Even when my heart is breaking
Even when it seems He's taken so long

[Chorus]
I Choose to believe
And never give up hope
God is good
He's in control
I'll keep the faith
I trust in His way
Even when His face is hard to see

[Chorus]
I Choose to believe
And never give up hope
God is good
He's in control
I'll keep the faith
I trust in His way
Even when His face is hard to see
I choose to believe 
I choose to believe

Jesus, Jesus how I trust Him
How I prove Him over and over
Jesus, Jesus precious Jesus
Over grace to trust Him more