A Year it has been......

It has been a year since Aidan's diagnosis. WOW really? I still can feel the pain and the sorrow. Feels like yesterday sometimes. First week of the diagnosis I cried every single day. I didn't think I would come out of this roller coaster of emotions. Then the next week I cried every other day. Now I cry once in awhile when I just need to let it out. Aidan has changed so much since last year. He is still doing speech and physical therapy. He does say words and sometimes puts two words together. Each day I remember that we were choosen as his parents for a reason. Sometimes I wonder why my little boy? why him? but then I remember what my friend told me when I was having a bad day a year ago. She said why not us? We were choosen for this for a reason, So why not pick us. We are strong, encouraging, and we will stand up and fight. Every day I try and remember that. We still have our struggles and we still have to make some hard decisions but we will do it to the best of our ability and do whats right for Aidan. This year has made me stronger and has made me realize things that I took for granted. I adore being Aidan, Jacob, and Abagail's mommy.

Guardian Angel

Sorry blogging has became the back burner for me. I know sounds horrible but life gets busy sometimes. I wanted to let everyone know on July 27th 2012 a special man went to heaven. My uncle, Mike, fought a long battle and never gave up! He is an encouragement to everyone that the little things don't matter anymore. We all have problems, We all have issues, but there is someone out there losing a loved one or battling something severe. Everyone asks me How do you go on? How do you live knowing your son's diagnosis? Well its called living for a reason. We live for the time we have, we live for that laugh from our kids, We live to give our kids a life. Everyday is a struggle I dont want to sugar coat it but everyday is also a gift. Each day I know that Mike was around me for a reason and we endured a lesson in life by his death. Going to bed at night it helps me to know Uncle Mike is watching over my kids and they have another guardian angel. Each day I wonder if I am making the best decisions for Aidan's care or if I am taking the wrong steps but there is no handbook for a child with Duchenne. There isn't a book you can pick up at the library and tell me how to deal with everything. We deal with it the best we can and we work through it.

Update

Haven't been blogging lately! Just been so busy with the kids out of school for the summer and now getting ready to go back to school. Updates on Aidan. Aidan has been doing good so far. We did go to the MD Clinic two weeks ago. They checked him and went over so exercises for his limping but other than that he is just being a two year old boy. We do have to make a few decisions before we go back to Ohio in October. The doctor in Atlanta and in Ohio are recommending Steriods for him. We haven't made a decision yet but we are thinking of the best options. He also has an elevuation in August for a preschool for special needs children. Not sure how I feel about it but I am gonna at least do what is best for him and go from there. I still consider him my baby so for him to go to preschool its kind of hard. Here are some highlights of the summer:

Hiking for the first time!

 I am just chilling!! :-)   

                  Sibiling Fun!

Race for a Cure!!!

Each day is a race against a cure for Aidan. He is just a loving little boy and this disease is an awful one. Each day I go on Facebook and see many parents posting things as in prayers, thankful for answered prayers, wishing for this to go away, just wanting the pain to go away or just peace for their family. We stand together as parents. We don't want this to become us but this is us. We are a family even though we didn't know this family even existed. We will be there for each other. Did i want this disease to be a part of our life? NO but am I glad that I am part of a DMD family? YES

Aidan is growing like a weed! He is thriving and doing well. We are so fortunate to have three wonderful kids. He has brought joy and laughter to our family. Abagail is his mommy #2. Jacob and Minnie left for a week to go to Florida and I didn't realize how much they help me with him. He didn't know what to do with himself. Aidan doesn't really have many things going on at the moment. Next month he is going to the MDA Clinic to meet the new doctor. In October he goes back to Columbus, OH to the great doctors up there. He is still having some issues but they have been far and between. We enjoy every second with him and know that we will get through anything!

Team Aidan

My favorite picture........ How can you say no to joining TEAM AIDAN?

MORE THAN MOST.............

                           

The title of this blog is about more than most. More than most Aidan has went through a lot. He has overcome many things and we are thankful for that but sometimes you have to think he is going through more than most people would have to endure in their lifetime. Aidan has been hospitalized three times in the past year. First one was in March 2011. He was in there for a week. We still don't know what caused it. Second one in July 2011. He had a muscle, liver, and skin biopsy. He stayed for five days. Again in May 2012. He only stayed two days but it was the worst two days. We were in a unknown city and they couldn't figure out what was wrong. These three hospitalizations doesn't include the numerous doctors visits that he has went to. We probably went to over 30 doctors visits this past year. I cannot compare Aidan to other children but I can to my other two children, Abby and Jacob. I never knew how fortunate we were as parents to have children with no illnesses and only getting a cold or something of that nature. It makes you appreciate more. It makes you want to document every smile and every milestone with all my three kids. You only have that one moment and you cannot get that back. We need to be thankful for what we have and how we got there. Now I am not saying I am happy we went through these experiences but I am appreciative that I have learned things through this journey.