Less than a week.......

                                                                            

                Less than a week we are going to Cincinnati, OH. I am having mix feelings about it. What to expect and how to deal with it? I usually don't blog about stuff like this but its says the Cabe Journey. It's emotional. Each day is getting easier to enjoy life and let the small stuff go but also when you have bad days it can make your day horrible. It teaches you to enjoy the small things. Yes the laundry needs to be done but what about playing with the kiddos outside instead. Now don't go to your husbands and say hey I cannot do my laundry because I need to play with the kids, I don't need husbands coming to me. LOL. Just like the book I enjoyed writing in the book it was kinda like therapy but its also hard to read the book. You are so proud to do something for your son and other parent's sons but its hard to know your son is one of the children with DMD. Right when I found out about Aidan's diagnosis I stayed up all night and made a slide show of Aidan and his disease. I have it on YouTube. I cannot watch all of it yet maybe one day but just not yet. I researched and researched and people didn't know what this disease was. If you say cancer they say awww I am so sorry but if you say Duchenne Muscular Dystrophy their like oh, They don't know if they should be sad or should say something. We have a few people say to us well you don't know that and you never know things will change. I know we don't know whats gonna happen in our future but the down play they give you i don't like. Duchenne is a serious condition. Some websites state its the most common fatal disease in the Muscular Dystrophy group. If you are a parent and you read FATAL disease how do you think your heart feels. Your heart sinks into your stomach! It's a process that you go through emotionally. All these feelings come all at you and every day you get new feelings and some fade away. You have to take one step at a time. You have to take in each breathe and savor each moment. We cannot predict the future as much of you know me I have been wishing to predict the future. You have to live through it.  The two words that help me each morning that I say to myself is HOPE and FAITH. I have hope for the future but I have faith that it will be okay.

Saving Our Sons & Daughters II

The book is in! I had a fabulous opportunity to write in a collaboration book with other parents to share their stories about DMD. If you would like to order one you can go to this link 

http://www.mistyvanderweele.com/sosd2orderpage/?ap_id=thecabes17

OR

I have bought 25 books so if you would like to order one just through me let me know my email is 

elainecabe@gmail.com

~Growing Up~

Each day we are enjoying seeing Aidan grow up with his brother and sister. Abby takes on the job as mommy #2. When he cries she is right there to pick him up and tell him he is okay. Now Aidan isn't the greatest youngest brother but he takes his job seriously. LOL. Especially when he thinks its funny to pull Minnie's hair. Jacob enjoys wrestling with him. As mommy tells them to stop I will have a smile on my face just because I am happy they play like nothing is going on in the world. Aidan is having issues with his legs. Some days he limps, sometimes he wakes up in the middle of the night, and sometimes he just says mama and rubs his hands up and down his leg. We do not know what this all means but I hope I will find out. We take one moment as it comes and we enjoy the little ones especially. I am fortunate that many love Aidan. He goes to a wonderful daycare Children's Learning Center in Buford, Ga. The owners are especially sweet and loving to my children. Aidan's teacher, Ms. Sheila, is amazing with Aidan. She makes sure he is well taken care of and spoils him maybe little too much. LOL. Together we do it. I cannot take all the credit. I am the Mom but I cannot do it my self. I am fortunate to have all the help and people in my corner.

Time for some information!

We would like to ask for prayers. My Uncle Mike has been battling cancer for awhile now. He has not been doing well. Even though he has been battling cancer he still has his faith and courage to go on. I admire him for that. I know we will fight for Aidan and I know I will have my bad days but thinking of Uncle Mike I just know I can fight this fight.


On another note........We got this great opportunity for Aidan to be seen by some doctor's in Cincinnati. I have heard great things about these doctors regarding DMD. We are excited to announce that we will be going there next month! I am excited and nervous. Maybe because I have to get on another plane but that is besides the point. Lol. Aidan will get to go on his first plane. I had to wait until a week before I turned 25. 

Easter 2012

Easter Sunday at Grandma's was a blast! Kids love going there for Easter Egg Hunt. That's  all the talk about when you mention Easter is going to Grandma's. We also took the kids to Build-A-Bear for Easter. It was the kids first time and they had a blast! Now Stephen and me might been crazy to go to the mall with six kids but we all survived. LOL.

MDA ATLANTA WALK 2012

We had a fantastic time for our first MDA Walk. I was nervous I am not gonna lie. This is the first official thing I did with MDA and first thing I have done because of Aidan's disease. I had great support from everyone this year. Our grand total of donations was $1500.00. We were pleased to have that much. I was blown away by everyone's donations and prayers for Aidan. Just thinking of my son with a disease is heart breaking but knowing I have people in our corner makes it so much better.  Aidan is just a wonderful little boy that will just put a smile on your face. We will fight and keep fighting for my son, the other son's and the son's that couldn't fight anymore.