Give Thanks!

We had a fantastic Thanksgiving. Couldn't ask for a better one. Aidan went to the MD Clinic last Monday to see the rehab specialists. My mom and me got some clarification on Aidan. He is a thriving two year old. Right at this moment there isn't much more we could do for him. Keep doing what we are doing. He has speech and some physical therapy. They said usually parents don't find out their child has this disease until their 5 or 6 so its a blessing we found out early. Of course I have this urge I want to do more. I want to do something but you really cannot. I figure we can show awareness, try to raise money for a cure, that is our best options right now. We cannot do anything to his body but we can spread the word around the world. So we have a few things in the works. The MD is having the walk-a-thon this March and we made a team called TEAM AIDAN. If anyone is interested joining our team let me know. Email is the best way to reach me: elainecabe@gmail.com. I want to still ask everyone to please pray for Aidan, our family, pray for all the children with DMD, and pray for the families of the lost.

On a good note, we are getting ready for Christmas

Thanks to my hubby for doing a terrific job decorating!

Raising Money for a Cause

Just wanted to give a huge thank you to HONDA PARTS CONNECTION off of Peachtree Industrail in Buford, Ga for raising a total $100.22 in change for MDA for Aidan. WTR Transmission and The Cabe Family is so thankful for their contribution. EVERY PENNY COUNTS!

Long Time

Sorry I have not been blogging lately. Been very busy lately with all the three kiddos. Aidan has been doing great no big issues at the moment. I did apply for disability for him so I am going through that process. Also I finally finished my story about Aidan as a co-author in a book so that was very exciting and loved that I got to do that. Also some calendars are coming out for Duchenne so if anyone would like to buy one let me know. I will have more information soon. Holidays are coming up and this is the first one since knowing about his diagnosis. I don't think it will change anything about the holidays. Holidays are usually a happy time and joyful time anyways. Aidan has an appointment with the MD Clinic this Monday. Little nervous as usual but I know it will be okay. We are just trying to still take one day at a time and enjoy every moment even if it is a little moment. Our goal as a family for next year is work hard for awareness for Duchenne, get healthier, and also hopefully we can fully adopt Aidan. We have alot of things to be thankful for and we are very blessed!

Lost to DMD

A little boy last night lost his fight to DMD. I took it hard. I do not know the family personally. I know of the family from being a co-author in a book with his mother. I felt pain and heartache for his family. He is with angels now and he is no longer affected by DMD. We do not like this disease and it just hits home within the Duchenne Community. I knew there were many that has lost their lives to this horrible disease. I am gonna fight for the lives that couldn't fight anymore and I am gonna fight for the ones that are still fighting. We need people to advocate, spread the word, and stand up for these boys and girls that have to fight to live. We need to help fight! We need to do all we can do to find a cure! We need to let people know what this disease is and what it does to the boys and girls with DMD. We are in this together and we will fight together!!!!!

Aidan's 2nd Birthday

Aidan's 2nd Birthday

Aidan had a blast for his birthday! It was his birthday but also a time to be together and enjoy each other. Saturday he got to have a party at my father's house and on Sunday had a party at my mother's house. I don't want to say it was just about Aidan. I think it was for all of us. This past year has been a rough roller coaster of emotions. It was a feeling of oh my goodness he is getting older. He has been in our home for a year and a half now. Seems like yesterday he was a baby. Sometimes I wish time would just pause for a second. He is growing up to be a little boy now, not my little baby boy anymore. Also feelings of one step closer to dealing with other things that we of course don't want to think about but we know their in the back of our mind. I think we still have some things to think about and questions that need to be answered. But we are gonna take one question at a time and we are gonna stay strong and determined. Right now Aidan is just enjoying life and he gives me strength and courage. I see him just laughing and playing. He is not effected by everything right now and we should just enjoy life as much as possible.