Truth on Paper

On Tuesday, September 20,2011, The MD Clinic called and notify me Aidan's DNA genetic test came back. It is confirmed he has Duchenne Muscular Dystrophy. He is missing exon 52 to 54. We all knew in our hearts and we all heard it already but for me it was hard. I had hope in my heart they were wrong. That is could be something else. Maybe in denial a little bit. Saturday the test results came in the mail and I read them over and over. This is true, this is what he has. Everyone asks so what's next? What are they gonna do? That is the hardest question to answer. There is nothing to be done right now. Live life. He is so young MD clinic justs watches him. He is doing speech therapy and physical therapy but other than that there isnt anything anyone can do. But I realized just because we cannot do anything to Aidan. We can do something for Aidan. We spread awareness. We get people to pray for him. We raise money for a cure. We will not sit back and wait for this disease to start when it wants to. We will start now. He is gonna be a kid like everyone else. I will make sure of that. Stephen and me will do everything in our power to do our best as parents and we will do everything to spread the word about this disease! Aidan is doing well. He still falls but what kid doesn't have bumps, bruises, and scraps. He is a boy right!

Trike-A-Thon in Aidan's honor

Our daycare, Children's Learning Center, was planning a Trike-A-Thon for St. Jude but when they found out that Aidan had been diagnosed with Duchenne they decided to have it in his honor. I was so touched. I didn't know about it until I saw it on their front door with a picture of Aidan. I didn't know how many people really cared about our family until now. He has a smile that can light up any room. His laugh just makes your heart warm. His little hugs make you want to melt. Jacob and Abby adore Aidan. Jacob wrestles with him and Abby tries to read to him. She is mommy #2 in the house. If Aidan cries Abagail is right there to see why. The grand total for the St. Jude Trike-A-Thon was........................................ $2742.00 but wait they didn't stop there. So far they have raised $487.00 for Muscular Dystrophy. Children's Learning Center is not a daycare to us, they are part of our family!!!!! From the Watson Family and Cabe Family we want to say THANK YOU to the owner's of the daycare, The Creech Family, without them my mom and me would be lost!  

Weekend

We had a fun filled weekend. Jacob has his first boy scout bbq and he was excited. Aidan and me stayed home and did some bonding. Abby and Jacob got to send some quailty time with their grandparents. Abagail loves their waffles. Lol. :-) Stephen and me finally took a night out to ourselves and went to watch georgia game and also see a movie. It was nice. Sunday we went on a boat with Stephen's parents. The kids loved it and Stephen and me really enjoyed spending quality time with the kiddos. Aidan loved the boat. He had no problems. He got in the water a little bit. Still waiting on his blood results to come back.

Skylar's Run 2011

We as a family went out to Skylar's Run. David and Michael did the 5K and did a wonderful job! Stephen, Kayla, my mom, all the kids, and me did the fun run! This was a first time for us showing support as a family since the diagnosis. I am not grateful for this disease but I am grateful what this disease has gave to us. It has brought our family together and has gave us strength that we didn't know even exsisted inside of us. Still trying to figure out on doing our on 5k but we will have one soon.

Labor Day Weekend

We had a wonderful time at the R-Ranch this weekend. It was great for everyone to get together and have no worries or stress for at least a few days. Aidan only had one bump and one bug bite. That is great for him. lol. We are still waiting on results. I know they say it takes awhile but I am very impatient! We watched the MDA telethon this weekend also. It was hard to watch. I cried a little bit. My husband held my hand and told me everything is gonna be okay. It was hard in a sense that what they are talking about my son has. It was little heart breaking. We will do everything though and we have hope that a cure will be found. I know twenty years ago they don't have the stuff we have now so we are making progress. Next month we are taking the kiddos on vacation to their favorite place. SEA WORLD. When we first got Aidan we took him there and we want to go there again. Great memories.

In the Moment

Aidan went to the hospital yesterday and got blood done. His poor little arms. He is a very strong boy though. One of our shops that we sell to took a jar that I made to raise money for Aidan on Tuesday afternoon and then by Wednesday morning they came back with a jar full of change. What a blessing!!! This disease doesn't just effect Aidan which he gets the worst of it but it effects our life and the way we think. A year ago my life didn't involve hospitals, researching, and asking for donations. One good thing that comes out of this is your family gets stronger as a family. Things you thought meant something really doesn't now. Everyone says I am doing great and strong for the family. The person that is strong is Aidan. I think he will always be that way. We went to Sam's Club yesterday. My mom let him run around everywhere. I just wanted to freeze time. He was running, laughing, giggling, and picking up everything. It's weird because at first you would be like don't do this or that because your a mom and he doesn't need to do all that. Their kids and you should let them be kids sometimes. Of course they need rules and structure but they need to be allowed to do things without the word no all the time. It's hard to think one day Aidan won't be allowed to run around and be so happy. It's hard to think I can't take this away from him. My son says mommy Aidan's muscles are not feeling well but they will get better. Wish it was that easy! We are grateful for him being allowed to be a kid. We will do everything we can to find a cure. We are here now in the moment and take one day at a time.