Lost to DMD

A little boy last night lost his fight to DMD. I took it hard. I do not know the family personally. I know of the family from being a co-author in a book with his mother. I felt pain and heartache for his family. He is with angels now and he is no longer affected by DMD. We do not like this disease and it just hits home within the Duchenne Community. I knew there were many that has lost their lives to this horrible disease. I am gonna fight for the lives that couldn't fight anymore and I am gonna fight for the ones that are still fighting. We need people to advocate, spread the word, and stand up for these boys and girls that have to fight to live. We need to help fight! We need to do all we can do to find a cure! We need to let people know what this disease is and what it does to the boys and girls with DMD. We are in this together and we will fight together!!!!!

Aidan's 2nd Birthday

Aidan's 2nd Birthday

Aidan had a blast for his birthday! It was his birthday but also a time to be together and enjoy each other. Saturday he got to have a party at my father's house and on Sunday had a party at my mother's house. I don't want to say it was just about Aidan. I think it was for all of us. This past year has been a rough roller coaster of emotions. It was a feeling of oh my goodness he is getting older. He has been in our home for a year and a half now. Seems like yesterday he was a baby. Sometimes I wish time would just pause for a second. He is growing up to be a little boy now, not my little baby boy anymore. Also feelings of one step closer to dealing with other things that we of course don't want to think about but we know their in the back of our mind. I think we still have some things to think about and questions that need to be answered. But we are gonna take one question at a time and we are gonna stay strong and determined. Right now Aidan is just enjoying life and he gives me strength and courage. I see him just laughing and playing. He is not effected by everything right now and we should just enjoy life as much as possible.

Truth on Paper

On Tuesday, September 20,2011, The MD Clinic called and notify me Aidan's DNA genetic test came back. It is confirmed he has Duchenne Muscular Dystrophy. He is missing exon 52 to 54. We all knew in our hearts and we all heard it already but for me it was hard. I had hope in my heart they were wrong. That is could be something else. Maybe in denial a little bit. Saturday the test results came in the mail and I read them over and over. This is true, this is what he has. Everyone asks so what's next? What are they gonna do? That is the hardest question to answer. There is nothing to be done right now. Live life. He is so young MD clinic justs watches him. He is doing speech therapy and physical therapy but other than that there isnt anything anyone can do. But I realized just because we cannot do anything to Aidan. We can do something for Aidan. We spread awareness. We get people to pray for him. We raise money for a cure. We will not sit back and wait for this disease to start when it wants to. We will start now. He is gonna be a kid like everyone else. I will make sure of that. Stephen and me will do everything in our power to do our best as parents and we will do everything to spread the word about this disease! Aidan is doing well. He still falls but what kid doesn't have bumps, bruises, and scraps. He is a boy right!

Trike-A-Thon in Aidan's honor

Our daycare, Children's Learning Center, was planning a Trike-A-Thon for St. Jude but when they found out that Aidan had been diagnosed with Duchenne they decided to have it in his honor. I was so touched. I didn't know about it until I saw it on their front door with a picture of Aidan. I didn't know how many people really cared about our family until now. He has a smile that can light up any room. His laugh just makes your heart warm. His little hugs make you want to melt. Jacob and Abby adore Aidan. Jacob wrestles with him and Abby tries to read to him. She is mommy #2 in the house. If Aidan cries Abagail is right there to see why. The grand total for the St. Jude Trike-A-Thon was........................................ $2742.00 but wait they didn't stop there. So far they have raised $487.00 for Muscular Dystrophy. Children's Learning Center is not a daycare to us, they are part of our family!!!!! From the Watson Family and Cabe Family we want to say THANK YOU to the owner's of the daycare, The Creech Family, without them my mom and me would be lost!  

Weekend

We had a fun filled weekend. Jacob has his first boy scout bbq and he was excited. Aidan and me stayed home and did some bonding. Abby and Jacob got to send some quailty time with their grandparents. Abagail loves their waffles. Lol. :-) Stephen and me finally took a night out to ourselves and went to watch georgia game and also see a movie. It was nice. Sunday we went on a boat with Stephen's parents. The kids loved it and Stephen and me really enjoyed spending quality time with the kiddos. Aidan loved the boat. He had no problems. He got in the water a little bit. Still waiting on his blood results to come back.